ESTABLISHING THE HOUSE CYSTIC FIBROSIS CAUCUS AND OFFERING LEGISLATION ON NATIONAL CYSTIC FIBROSIS AWARENESS MONTH

Washington, Mar 15, 2006 - "Approximately 30,000 children and adults in the United States struggle with this horrible disease, and more than 10 million Americans carry the cystic fibrosis (CF) gene without having the disease," said Rep. Cliff Stearns (R-FL).  "A few decades ago, children with CF often did not live past their 10th birthdays, but, today, the life expectancy is 35 years.  I am proud to join in establishing the House Cystic Fibrosis Caucus to bring attention to this disease in Congress, and to offer legislation honoring National Cystic Fibrosis Month in May of 2006."

Cystic fibrosis is one of the most life-threatening genetic diseases in this nation.  People with CF have two copies of a defective gene that makes their bodies produce abnormally thick, sticky mucus, which clogs the lungs.  This causes difficulties in breathing and can lead to life-threatening lung infections, as well as malnutrition and liver damage.

Stearns and Rep. Edward Markey (D-MA) are establishing the House Cystic Fibrosis Caucus to recognize and contribute to finding a cure for CF, and to promote CF screening, awareness, and education.  In addition, Stearns and Markey are offering legislation honoring National Cystic Fibrosis Awareness Month, which is May 2006.  Stearns and Markey will announce the mission of their new caucus at an event on Thursday, March 16th, at 3:30 p.m. in room 2123 Rayburn House Office Building.