Reps. Markey and Cliff Stearns (R-FL) launched the Bi-Partisan Cystic Fibrosis Task Force on March 16, 2006. The mission of the bipartisan Caucus is to encourage Congressional stewardship, to find a cure or control for one of the most common and life-threatening genetic diseases by: increasing awareness of CF and educating Congress and the public about the disease; improving the quality of life for people with CF; supporting CF research funding through the National Institutes of Health (NIH); encouraging collaboration between the public sector and private research organizations, including the CF Foundation and the biopharmaceutical industry; advocating for earlier diagnosis through state-based newborn screening; and promoting public policies that address the research and health care needs of the CF community, including access to quality health care.
June 24, 2011: Rep. Markey meets with families from Cystic Fibrosis Foundation on Teen Advocacy Day