Washington,
D.C. -- Mr. Speaker, I thank the gentleman from New Jersey very much
for the opportunity to participate in this discussion and look forward
to the successful efforts for all of us on this floor to be able to debate
and vote on a comprehensive Patients' Bill of Rights.
It
is hard for me to imagine that there is anybody in this body who has not
received lots of mail from their constituents about the abuses that are
taking place every day. I have been hearing both from people who
give care, nurses and physicians, and people who receive care, who are
seeking the care, the patients.
I
want to give my colleagues one example of a heartbreaking letter that I
received. It starts,
Dear
Representative Schakowsky:
I
am a 31-year-old nurse with breast cancer. Because I am an HMO member,
I have had recurrent problems with receiving health care. As a patient,
I have not yet received compromised care, but I have been denied services
or have been told where to get care and who could give me care. I
recently also was made to change primary doctors, giving up one that I
had for 8 years because of my HMO.
I
heard you speak on behalf of the Patients' Bill of Rights, and I need you
to know that, as a health care provider and receiver and HMO member, I
am certain that care is being compromised and restricted and refused to
us.
I
am knowledgeable about the health care system, and I am still able to be
my own advocate, but I am sure one day I will not be able to make telephone
calls endlessly pleading for standard of care. Who will do it for me? Why
do I need to beg for treatments or for the right to remain in the care
of my own doctor?
I
am receiving follow-up care from my oncologists after having a stem cell
transplant for metastatic breast cancer, and I am worried that continuity
of care will be compromised. And I will only be treated if the HMO sees
fit rather than being able to rely
on
the judgment of a physician who had known me for eight years and an oncologist
who has seen me every month for a year. I want managed care to stop making
medical decisions. I have a right to health care.
As
a nurse, I also know that quality health care is the issue. Having cancer
has changed my life. Having adequate health insurance was a wise choice
I made 10 years ago. Today I am fearful that I have no rights as an HMO
member. That is one battle too many for me to take on.
It
frustrates me so much after having received this letter, and it is one
of many that I have received, probably one of the most articulate descriptions
of the problem, that we have to go through such a cumbersome process of
marching down and gathering enough signatures for a petition simply to
have the right to debate this issue fully in the House.
One
would think that all the Members would jump at the opportunity to do that
on behalf of our constituents. The only thing I can think is that the concerns
of the health care industry, of managed care companies, of insurance companies
has superseded
concerns
for ordinary patients and consumers in our districts.
I
do not think it is sound health care policy to force a breast cancer patient
to give up a physician of eight years. It is not sound health policy to
force a breast cancer patient like my constituent to beg for treatment.
It is not sound health policy for insurance
companies
to make medical decisions. It is not sound health policy for the United
States Congress to delay action on preventing these abuses.
We
have a number of excellent proposals, H.R. 358, the Patients' Bill of Rights,
and as a prior colleague of mine said, there may be many who disagree with
that, but we certainly should be able to discuss a bill that has provisions
such as providing full and fair
access
to specialists and to emergency care, giving patients the right to timely
appeals, including the right to appeal to an external and independent entity,
holding managed care plans accountable for all their decisions, including
the decision to deny care, and
letting
medical professionals and their patients make the medical decisions.
|