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Mr. Speaker, Monday, May 10, marks the first observance of World Lupus
Day. Coordinated by the Lupus Foundation of America, this event will focus
on accurate lupus diagnosis, improved patient healthcare services, and
increased research into the treatment and cure of lupus. I am pleased the
Arkansas chapter of the Lupus Foundation of America will host World Lupus
Day activities. The chapter has scheduled a public open house on May 10
in its main office located in Hot Springs that will feature a live radio
broadcast on KLAZ-105.3, videos of lupus patients sharing their experiences,
and dissemination of educational materials.
Started in October 1993, in the guestroom of the founder's home, the
Arkansas chapter of the Lupus Foundation of America has grown to 200 members
and serves the entire State of Arkansas. Mrs. Jamesetta Smith saw the importance
of starting the chapter when she and her husband moved to Arkansas in 1992.
As a lupus patient herself, Jamesetta knows about the importance of education
and support for those directly and indirectly impacted by the devastating
disease. Lupus patients need someone to talk to who understands and knows
firsthand about the physical and emotional challenges that lie ahead. To
help these individuals, the chapter's Hot Springs and Ft. Smith offices
host monthly support groups, free of charge. To support the Arkansas chapter's
many efforts and awareness activities, patients, family members, and supporters
come together regularly to raise funding.
It is estimated that nationally 1 out of every 185 persons has lupus.
According to the Lupus Foundation, about 1.5 million Americans have a form
of the chronic, incurable disease that can result in severe joint pain
and swelling, fevers, fatigue, and other health effects, including organ
failure and death. Needless to say, lupus is a widespread disease that
touches the lives of millions of Americans. I am glad Mrs. Jamesetta Smith,
Founder of the Arkansas Chapter of the Lupus Foundation of America, took
on the challenge of developing and implementing a chapter and based it
in my Congressional District. She and the chapter's volunteers are to be
commended for their hard work in informing Arkansans about the symptoms
and health effects of lupus and providing important facts to help the public
better understand the impact of the disease. |
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